Who are we?
The London School of Hygiene and Tropical Medicine (LSHTM) is a UK university and is the sponsor and data controller for the study. The study is undertaken in collaboration with the Intensive Care National Audit and Research Centre (ICNARC).
What personal data do we collect?
To help us manage, and meet the objectives of, the study – ICNARC and LSHTM collects and holds personal data about you (and other participants). This information (such as your NHS number, date of birth, and hospital treatments) was collected by the staff participating in the National Cardiac Arrest Audit (NCAA) at the hospital where you were admitted. Information on your survival up ninety days after discharge was collected from Office of National Statistics data.
What do we do with your information?
Information from NCAA between 2009 and 2015 was linked to national databases held at NHS Digital ((an organisation that manages access to a database of NHS records) to determine survival and to compare how well the different hospitals taking part in the audit were performing. To obtain this important information, the NCAA team send your date of birth, NHS number and sex to NHS Digital using a secure password protected online file exchange service. An authorised person from NHS Digital then links the identifiers to the national records and then strips out the NHS number and date of birth and leaves only age in years and sex. The linked database is securely sent to the LSHTM for storage on a secure server ready for analysis.
All of the information is held in a secure password protected database, with access only by authorised research team members at LSHTM.
The linked NCAA-Hospital Episode Statistics-Office of National Statistics research database is stored on a secure server managed internally by the LSHTM The organisation takes steps to ensure this information is not lost and makes regular back-ups of the data.
How long do we keep your information for?
At the end of the study, LSHTM will permanently destroy the linked NCAA-Hospital Episode Statistics-Office of National Statistics research database. It will not be possible to identify any person who has taken part in the study in any reports or articles.
Your rights over your information
LSHTM process data for this study under the following legal basis: “task in the public interest” and “necessary for scientific research in accordance with safeguards” (Articles 6(1)(e) and 9(2)(j) of the General Data Protection Regulation). This is because the organisation is a registered higher education institution and the data processing described here is to support scientific and statistical research. Your rights to access, change or move your information from the database are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
More information about the Prevention, Detection and Rescue of Deteriorating Patients. Which combinations of interventions are most effective? study is available on this website. If you have any other questions please contact:
Dr Helen Hogan, Chief Investigator firstname.lastname@example.org 020 7958 8293
Your right to complain
If you have a complaint about our use of your information, you can contact the Information Commissioner’s Office via their website at www.ico.org.uk/concerns or write to them at:
Information Commissioner's Office